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Multigenerational Mom Muses on Twin Toddlers & Twenty-Something Daughters

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NICU

Struggling Is Not Failing: New Life and the Worries Born With It

I love seeing new things – things I’ve never seen before.

A few years back, I saw my first fox. She was making her way across the neighborhood green space under cover of darkness, but the streetlights revealed her unmistakable fiery fur and trotting stride. She was beautiful.

I was in awe.

And then yesterday, I saw my first great-nephew. He was lying sweetly in a nest of swaddling blankets, tiny paper finger and toenails topping long, fragile fingers and long, slender feet. He is beautiful.

And I am in awe.

He came early. Seven weeks early. And his mama suffered. She was put on hospital bed rest and then filled with the fumes of a hazy, magnesium hell to battle the preeclampsia ravaging her body.

It was not fun. Nor was it effective. He “broke” her belly (as my sons say) via C-section the very next day. At 33 weeks.

But he is 33 weeks of pure perfection. Surprisingly alert, his eyes dance inside a noggin tiny enough to fit in a teacup, his elfin features glow beneath a widow’s peak of dark, twiggy hair.

This newborn child is beautiful. And so is his newborn mother.

She is pure perfection. Her eyes smile through the pain of incision, through the fog of postpartum, her freckled features deceptively serene beneath her halo of glossy, dark hair.

Because she is the perfect newborn mother — full of self-doubt, full of concern, full of fear.

She worries about milk supply and let down. She worries about milestones to be met and schedules to be set. She worries about bonding time and spending time with her twiggy little nestling when she’s discharged and he’s left behind in the NICU.

She worries about nurturing him and guiding him and loving him well enough to one day set him loose in this big, scary world with all the tools and confidence he needs to flourish.

She has so many worries. But those worries make her the perfect mother. Because that’s what good mothers do. They worry. And I would worry if she weren’t.

Really good mothers strive to always do the right things — the best things — for their little ones, no matter how big they get. No matter how old.

But good mothers never do ALL the right things; they never do ALL the best things.  Because mothers – even the really good ones like my niece – they’re only human. So they struggle.

But just because you are struggling doesn’t mean you are failing.

I saw that on a meme just yesterday and it spoke volumes to me as a mother, as a wife, as a writer, as a teacher.

Because just like my niece, I am struggling.

Because another new thing I saw this week was a brand new classroom — in a brand new school system. And it has left me full of self-doubt and fear and concern. I am full of worries.

I worry about school supplies and letting people down. I worry about the schedule to be set and the milestones to be met. I worry about bonding time with my students and spending time with my twins.

I worry about nurturing them and guiding them and loving them all well enough to one day let them loose in this big, scary world with  all the tools and confidence they need to flourish.

I want to do all the right things, all the best things. And I know I won’t do all the right things all the time. I won’t always do the best things. I have so many worries. But hopefully those worries make me a good teacher.

I struggled a lot last week. My niece struggled a lot last week. But we both have to remember that struggling doesn’t mean we are failing. Humans struggle — we’ve been doing it since the Garden of Eden. We trip. We fall. We get back up again. We persevere. We triumph. We excel.

It’s all about the perseverance. And Grace.

Because thanks to the grace of God, if our intentions are pure, and our efforts are hard, and our passions are strong, we will not fail. Struggle, yes. Fail, no. We can do this hard thing.

So Lauren, you and me — and all the mothers and teachers and humans out there — we can all do this hard thing. By the grace of God.

I am in awe.

 

 

 

What the Ronald McDonald House Means to our Family

I’ve tried on at least three different occasions to write about the Ronald McDonald House and what it means to our family– specifically the one in Chattanooga across from Erlanger Hospital – and each time, words  have failed me. I’m trying one more time…

The birth of our twins was a chaotic, emotionally-fueled time in our lives. Our boys were in the Neonatal Intensive Care Unit, and we found our heads full to overflowing with medical details and our hearts bruised to bursting with love and fear for our boys. We spent the vast majority of our waking hours swimming in an exhausted state through the dim and beeping expanse of the NICU. There were scrubbing stations and hand sanitizers and security procedures and crib after crib of sick babies to navigate just to reach our own babes. And then once there, there were machines and syringes and tubes and wires to navigate before we could ever hold them. And holding them was our life raft. Holding them calmed the seas of frustration and fear and soothed us all.

But if holding the boys was our life raft, the Ronald McDonald House was our rescue ship. Because on the fourth day, I was discharged from the hospital – and the boys were not. And we were going to be separated – and I really didn’t think I could weather that emotional storm.

But then the house named after the clown that sponsors the largest fast food chain in the entirety of the universe opened its doors to us. Seems crazy when you think about it that way. But I’m telling you right now, it is far from a joke. It is the real deal. It is the best of what humanity can do for its own.

The Ronald McDonald House is the place where parents of children hospitalized and far from home are given shelter and support and a place to eat and sleep and cry and pray and struggle through the days and weeks and sometimes months of helpless and hopeless feelings without having to feel homeless too.

It is a sanctuary. There are warm beds and warm dinners and warm showers. And there is privacy. Privacy to pray or cry or both – in a small chapel or a serenity garden or on a soft, comfortable mattress in the quiet, comfortable guest rooms.

And there are supplies — toiletries and snacks and various and sundry necessities that help families get through the toughest of times when they don’t have the time to think about such things, much less shop for them. It is all available and there for the parents.

And all for the whopping cost of $10 a day — if your family can afford it. But absolutely no family is ever turned away. Ever. The RMH philosophy is that sick children need their parents and no parent should worry about daily needs if a child’s health is at stake. They also know and understand that young patients have far better medical outcomes if their parents are near. I, for one, agree for a couple of reasons.

Beyond the obvious — that we wanted desperately to be close to our babies — we also needed to be close. Because a mega-majorly important part of our boys’ treatment plan was breast milk — that thick, nutrient-and-calorie-and-immunity-rich mama medicine was just what the doctor ordered. And being just down the hill from the hospital (we’ll talk about that hill in a minute), made it so much easier to keep my milk supply in fresh and steady supply —  as opposed to being shuttled over an hour away in an ice-packed cooler from back home in Georgia. So in the cozy comfort of our private guest room — complete with an extra queen bed for my mom and Mike’s parents (who provided endless hours of assistance and support), I pumped and Mike delivered (up that aforementioned hill) – like clockwork every three-and-a-half hours every night for almost a full week. Until Parker was discharged at nine days old.

But back to that infamous hill; that doozy of a mother of a hill; that steeply slanted, sidewalk-striped gauntlet-of- medieval-proportions hill. It was torturous to say the least. But Mike navigated it like a knight in shining Under Armor — or a milk man — a gallant, modern-day milk man. He toted bag after bag of freshly-pumped breast milk up that hill. He even pushed the milk maker up the hill in a wheelchair on more than one occasion (since I’d had a c-section and wasn’t supposed to climb anything). Good thing he pushed linemen around in college because I was definitely a heavy load – a heavy, post-partum-post-twins kind of load.

And speaking of heavy loads, everything about that time in our lives was heavy. Our hearts, our hurdles, our hospital bills… but the Ronald McDonald House lightened our burdens on so many levels, and we can never repay the kindnesses heaped upon us while there.

But we try. It has become our charity of choice. We’ve written checks, we’ve sprinkled change in drive thru boxes, and we’ve ordered the annual Ronald McDonald House Christmas ornament with our boys’ names inscribed. Every single year. I want to give more. To do more. I wish there were one closer to us.

Mostly, I would love to help cook warm meals for families  — because that was perhaps the most comforting of all the blessings RMH bestowed upon us: those hearty, healthy meals. I recall tuna noodle casseroles and giant pots of southern green beans, big, baked lasagnas and fresh garden salads. Meals were prepared nightly by sorority houses and church groups, fraternity brothers and book clubs. Those meals were nourishment not only to our bodies, but our boys’ bodies, as well. Generous, kindhearted strangers cooked up the very best suppers that helped me cook up the very best sustenance for my newborn twins. I can never thank any of them enough.

The Ronald McDonald charities really do provide boundless blessings for families of sick children all over the world. They certainly kept us afloat during that most precious and precarious time in our lives. I cannot say enough positive things about them. Please consider throwing a little change their way in the drive thru of your local McDonald’s. Or volunteering at one of their local chapters. Or ordering one of their lovely ornaments. Or writing a big check. Please.

Families of sick children everywhere thank you.

Our Hard, Hellish Journey through the Place Where Miracles Mature, the NICU

We got pregnant four years ago via IVF. We used donor eggs, fresh and locally sourced. I guess our pregnancy mirrored the current foodie trend, although it wasn’t quite farm to table. More like follicle to petri dish to uterus, with a five-day incubation in between.

You see, I was too old to supply eggs of my own. I was two months shy of forty-seven when we began the process, and I was forty-eight when I had the boys. Everything in between went smoothly enough (relatively speaking), from embryo transfer to the thirty-fourth week. But that’s when things took a rapid tumble downhill. That’s when my “Advanced Maternal” body declared mutiny on the whole pregnancy thing by throwing some protein in my urine and slinging my blood pressure into the stratosphere.

I don’t remember a whole lot between then and the two days it took to bring the boys into the world because magnesium was introduced to my blood stream (Which is the Devil. Magnesium is the Devil). I recall a little ambulance ride up over the state line where our maternal/fetal specialist practiced. I recall fainting while lying flat on my back. I recall oxygen masks and my 300-pound husband tightly poured into the wrong size scrubs. I recall (fuzzily) my twenty-four-year-old baby girl sleeping on an orange couch in the corner of my hospital room with the cushions piled over her head. I vaguely recall talking to my eldest baby girl via FaceTime and her double and triple checking what actions the doctors and nurses were taking. And I remember kissing the boys on their wet little heads before they were wheeled away into the NICU. That’s pretty much all I remember about those couple of days.

Now we were extremely lucky with our boys. Thirty-four weeks is a solid gestation time for preemies. Hearts and lungs are developed and strong. Immune systems are decent. The only real issues we had to face were body temperature maintenance and feeding challenges. Boys are notoriously lazy eaters (you would never know it now), and because of that, Tate and Parker spent six days and nine days in the NICU, respectively.

For those of you unaware, September is NICU awareness month. That’s why I am revisiting one of the most difficult times in our lives. NICUs are hard places, one of the hardest places on this earth. Babies should never have to suffer. Innocence should know no pain. Innocence should know no struggle.

I think that’s why NICU families will always have a tender place in my heart. I don’t know if there is any situation quite like a NICU stay. Think about it – here you are, in what is supposed to be one of the most magical and perfect times of your life – the birth of your child. It’s the moment you and your spouse have prepared for since you first peed on the stick and got the news. And then something goes wrong. Sometimes horribly wrong. There is nothing quite like that kind of an emotional hijack.

And Mike and I had it relatively easy, all things considered. (Although at the time, it felt anything but.) Nine days in the NICU would be a Godsend for some preemie parents.  We were surrounded by cribs housing babies who had been there for months and months, parents loyally by their side. Babies who had undergone surgery after surgery. Babies whose cribs were peppered with personal items from home. Or worse. Babies who had been there for months and months with no personal items and no family members to be found. Crack babies. Unwanted babies. The world can be a cruel place for some of the most amazingly beautiful miracles ever made.

I can’t even imagine seeing the suffering day after day. I have no idea how the staff holds it together amongst that kind of injustice. My faith would waiver, I tell you. It would waiver big time. As it was, our babies were loved and they were relatively healthy and they were incredibly strong. All of those little warrior babies in the NICU are strong. Much stronger than the parents. Me, I was an absolute disaster.

Those nine NICU days, I felt like a giant, injured cuticle, stripped and torn, tender and exposed. I cried at the slightest provocation. When the elevator was too slow, I cried. When the hallway was too crowded, I cried. When I held the boys for the first time… I didn’t cry. I vomited — the anesthesia from the C-section. But that second time –oh, I cried.

I cried when I pumped for what felt like hours the very first time – my nipples stretched thin and angry and complaining like hell. I cried. And when all I got for my hard-fought labor was the tiniest, most miniscule amount of colostrum you ever did see, I cried. And when the nurse divided up that tiny little miniscule amount of colostrum and put it on two separate Q-tips and swished it around in the boys’ mouths, I cried.

When we bathed the boys for the first time, their wrinkly little alien bodies so slippery and small I feared they would slide right through my fingers, I cried. And when my milk came in and my chest rippled and ridged and cordoned itself off like a honeycomb, chamber after chamber flooded with liquid gold, I cried.

The worst, though, was if somebody was nice to me. If somebody smiled kindly at me, it was over. Or if I saw something beautiful. Like my boys. They did me in every time. But so did the long, sunny mural on the way to the NICU — a green and golden ant village, with ants sailing on leaf rafts, or ants raking their gardens, or ants swinging on tire swings or flying on butterflies. It was beautiful and whimsical and comforting. And it sent me into a bleary, teary, snot-filled mess every time Mike wheeled me down the hall.

And it wasn’t just me. This NICU time was also the first time I ever saw Mike cry. He’s big. He’s strong. He’s a meathead. And he’s a fixer. But this was something beyond his fixing abilities. This was all up to his boys — his tiny, fragile, five-pound boys. They had to decide when they would eat what they needed to eat – and on a consistent basis – to be allowed to go home.

I saw him break down for the very first time one morning at the breakfast table. His shoulders shuddered, his face folded under and crumpled, and there, above his cereal bowl at the Ronald McDonald House (I can’t EVEN tell you how much we owe to the Ronald McDonald House, but that’s another blog), he wept. And I cried. (Apparently there was another instance where he sneaked into the chapel across from our room and cried and cried and cried. I wasn’t there for that one. But I’m telling you, the NICU is hard on the strongest among us.)

Yes, the NICU is a hard, hard place, but the people there are far from hard. They are big-hearted and oh-so-capable. The nurses and doctors who work in a NICU are special people. They have to be, to work somewhere where innocent souls suffer so unjustly. To dedicate themselves to a life surrounded by the harsh realities of a cold universe…every single day… I don’t understand their endless capacity for TLC without frustration, but I am forever grateful for them.

Those nurses, especially, were our salvation. They instructed us, they comforted us, they listened to us. They rattled us sometimes. And sometimes they just made us mad.

I’ll never forget one NICU nurse in particular. I thought I hated her. I thought she was the worst one of the bunch. She was grouchy and my nerves were brittle, and I humbly admit I despised her. I thought she was so self-righteous. Turns out, she was just plain right.

That cranky, caustic nurse was actually an efficient, matter-of-fact caretaker who knew her stuff and took a no-nonsense approach to her little patients. She was the one who showed us the technique that finally got Parker to eat so we could take him home. She may have been cranky, but she was an absolute Christ figure. She sacrificed personality for patient progress, and she saved us from who knows how many more days in the NICU and how many more nights in the Ronald McDonald House. I will never forget her grumpy ass.

Yes, NICUs are hard places and special places. They are grueling. They grind parents down. But they lift babies up. They are a place of miracles, where miracles go after they are born, to heal up and head home – to their earthly home or their heavenly home.

NICUs may feel like they are Godforsaken places, where the innocent suffer without cause, but NICUs are far from Godforsaken. He puts His best angels there:  the gentlest, the ablest – and sometimes the crankiest angels there to do His work. They shelter those little miracles until they are ready for the world.

But sometimes the world is just not ready for some of them and they go back to Him. At least that’s what I have to tell myself. Otherwise I can’t. I just can’t.

Yes, NICUs are very hard places.

NICU Memories and Musings: a hellish ride in the holiest of holies

The Neonatal Intensive Care Unit – a clinical cocoon of a womb for babies born too soon or too hard. For some families, it is a beautiful place. A site of unmatched miracles and grace. For others, it is a heartbreaking place. A place of pain and unconscionable loss. For all, it is a place that houses love and fear and absolute out of control situations and emotions. It is a place both holy and hellish, where innocence is taken to either heal or to die.  It is a hellish ride through the holiest of holies.

The first time I entered the NICU to see my twin boys, I was terrified. I didn’t know what to expect. Didn’t know what I’d see. Had no idea how I’d feel once I did see them. Suffice it to say, the experience was overwhelming. I vomited. Partly from the anesthesia after-effects, but largely due to the emotions that surged through me. A storm surge of terror coupled with love. My boys were so tiny, so fragile. There were tubes and monitors and beeping machines everywhere.

After that initial chaos, I calmed down. I collected myself. It was then I registered my surroundings. Everything was hushed and dimly lit and deceptively serene, considering the delicate nature of the patients and their varied conditions. But definitely hushed and dimly lit.

It felt like a church. But holier.

Holier because it was full to bursting with innocence. Six rooms, called pods, full to bursting with pure, unblemished innocence.  Innocence in birthday suits, tanning under lights, innocence bundled up to the eyeballs like cotton-swaddled ninjas, Innocence helmeted in CPAP masks and Velcro. Innocence with solitary, glowing pulse ox ruby slippers – and parents promising “There’s no place like home… there’s no place like home…so let’s get there.”

Now we were unbelievably fortunate. Our boys were born at 34 weeks 5 days.  Preemies, yes. With battles, yes. But their battles were a far-cry from the wars that were being waged around them by their 24, 25, 26 week counterparts. Preemies crippled and broken and fragile and fierce.

Preemies fight hard. Famously so. They never cease to amaze the doctors and nurses and their parents. They are bony and brittle, but Lord have mercy, how they fight. They have butterfly wings for skin; they are thin and veined; there is tape pulling at their newness and needles piercing their perfection. Their surface is marred to save their soul.  And goodness, how that soul fights.

Saving innocent souls. So not like church, after all.

But then, like church, the NICU is full to bursting with prayer. Prayer of all kinds. Prayer, well-practiced and well-formed, or haltingly hesitant. Prayer, desperately flung like a Hail Mary, last ditch effort to bargain for what feels like the impossible. But with God and love and miracles made all-the-more-routine through modern medicine, those Hail Mary’s are caught more than they’re dropped. All types of prayer form on the lips of preemie parents. We were no exception. We prayed, often. For our sons and for all of those preemies around them.

There are miracles in the NICU every day. More than one a day, 365 days a year. Against seemingly insurmountable odds. These smallest of warriors fight. They are so much stronger than their parents. The parents crack. We cry, we rant, we bargain and beg and rage and plead and cave. But these wee ones… they fight. Hard. And often – quite often – most often – 98-percent-of-the-time often — they win. So there are many, many, many miracles in the NICU.

And there is communion in the NICU. Hunger and thirst satisfied on a physical, spiritual, and emotional level. Flesh made perfect through the transformative powers of maternal biochemistry. Doctors and nurses encourage preemie moms to breastfeed — because in the NICU, breast milk is not just nutrition; it is medicine. With this most perfect food comes antibodies, anti-inflammatories, and other nutrients (like fatty acids, digestible proteins and stem cells) that can help power these infants through the gauntlet of bacteria and viruses that lay in wait. A mother’s body responds to any hostile environment around her infant, and adjusts her milk accordingly.

Breastfeeding my boys helped transform not just them, but me.The roller coaster of hormones and emotions that always comes with the postpartum experience was a hundred times harder and rougher with the NICU included in the mix.  I was an absolute mess. I was stressed and depressed and fatigued. But the skin-to-skin bonding I felt through nursing helped ease my anxiety and exhaustion. Nursing my boys calmed my core and centered my soul solely on them: the smell of their skin, the tickle of their breath, the warmth of their weight. Their most perfect food was my most perfect therapy.

And Mike got in on the skin-to-skin communion, too, through kangaroo care. Watching him wrap his wide, warm arms around our tiny guys, seeing them snuggled safe against his chest, I saw him change. I saw  his hard edges soften; his tough-guy exterior melt away. He was instantly putty in their pouty-lipped presence.

The NICU is a hellish place. It is hard and draining and demanding. It left Mike and me feeling defeated 90% of the time our boys were there. It was a place that tested our endurance and our strength — and fortunate for our family, we were only there for 6 days for one boy and 9 days for the second. What we went through was nothing compared to what some preemies and their parents go through. NICUs are hellish places full of unfathomable hurdles. But 98% of the time, they become miraculous places full of undeniable grace.

But what NICUs are most full of is babies — very, very special babies. Babies who fight like the dickens for their chance at life. This month, the March of Dimes campaign reminds our family of that distant battle we once waged and prompts us to give what we can to help current and future little ones — and the medical professionals who look after them– bring that miracle percentage up to 100%.If you can, won’t you please consider giving, too?nicuboys

 

 

 

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